Refsum Disease - Early Diagnosis is Critical

February 28th is recognized internationally as rare disease day, and the Global DARE Foundation is here to Defeat Adult Refsum Everywhere. Did you know that one in 300 people who have Retinitis Pigmentosa also have Refsum disease? Dietary therapy can slow sight and hearing loss associated with Refsum and lessen other symptoms.

Join the Global DARE Foundation community by visiting DefeatAdultRefsumEverywhere.org. And please share this video to raise awareness and enable early diagnosis #rarediseaseday #RareAndAware #curerefsum #retinitispigmentosa #lowvision

Learn more about Adult Refsum Disease at Global DARE Foundation's website.

Veröffentlicht am 06.04.2026

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Refsum Disease - Early Diagnosis is Critical

February 28th is recognized internationally as rare disease day, and the Global DARE Foundation is here to Defeat Adult Refsum Everywhere. Did you know that one in 300 people who have Retinitis Pigmentosa also have Refsum disease? Dietary therapy can slow sight and hearing loss associated with Refsum and lessen other symptoms.